Dwarfism

This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century-particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases. Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care-transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families. The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals-physicians, nurses, genetic counselors, social workers, psychologists, and medical students. A great leap forward for the social and cultural condition of dwarfism. -- Andrew Solomon, author of The Noonday Demon: An Atlas of Depression Newsday 2005 Adelson presents tactful techniques and definite guidance, including what not to do. -- Michael A. Schmidt, MD, PhD JAMA 2005 One of the best, most thorough overviews published on dwarfism and related topics. -- Gad B. Kletter, M.D. New England Journal of Medicine 2005 I strongly recommend this book: its insights are unique, and it should prove of value to affected individuals, their families, and the healthcare professionals participating in their care. -- David E. Sandberg American Journal of Human Biology 2006